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Nope, it’s 10 years of living with a colostomy bag. However, a lot has changed in the last few years and there are so many things I wish I’d known earlier on.
Now, if someone had said to me 3 years ago I would talk to even my closest friends and family about this ‘thing,’ let alone millions of you, I would have laughed them out of the bar (that’s where we would have been, as I would have had to be consuming a lot of alcohol to come up with an idea that was so insane). So here I am, ten years later and I’ve decided the best way to mark the occasion is to write a message to the old me and to all the other women who may just be starting out on that same journey, about the new world I was entering.
over the past year and a half, i have had difficulty coming to terms with my bag.
i have gone through stages of being so disgusted with myself i couldn't even look at my own body in the mirror, i haven't even been able to tell my friends because i felt so ashamed and embarrassed. the reality is that this bag saved my life, it also gave me back the life that my illness took away from me.
i had been in and out of hospital months previous to this, the doctors had tried every medication to try and get me better, but none of them worked.
so the decision was made that i was going to need surgery, but first i had to have an MRI scan to see what the surgeon was going in to.
Obviously I don’t mean medically – ALWAYS take their advised medically! Only took me nearly 10 years to get there…When you first get your bag, you are given a list of about 2 billion things you cannot eat.
not only had my bowel become completely closed off at one bit, but the bowel had also managed to twist itself inside of itself at another bit.
Whilst I do not have the time, or to be honest the inclination, to take on the world of Ostomy education, (I do have a full time job, fiancé, step son and a completely neglected gym schedule to tend to! “I don't think anybody understands how grateful I am to have my ‘bag’.
After a five-and-a-half-hour operation nearly three months ago, I never thought I'd be confident enough to show everyone what this illness has resulted in - my ileostomy bag.
" my @crohnsandcolitisuk story 💜 #Crohns #crohnsawareness #IBD #crohnsandcolitisuk A post shared by Crohn's and Colitis UK (@crohnsandcolitisuk) on Through here, I started to read real stories, from real people, that reassure you that you are not alone and your fears and worries are often shared.
I now follow a number of ostomy advocates on Instagram and Facebook and love seeing their stories on a daily basis and seeing they all have bad days too.Our original Facebook post went viral, reaching 12.6 MILLION people and 246,000 Likes!